Sasha Segal and Joanne and Mike Huff's Fundraising Page
Adaptive Sports Partners of the North Country, Inc
Sasha Segal and Joanne and Mike Huff's Fundraising Page
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In 2015, we learned of the Sunrise Ascent on Mt. Washington and instantly knew we wanted to be a part of this special event. Sasha is an adventurer at heart, a fearless and inquisitive individual with a deep love of both nature and people. Sasha will soon be 21 years old as she defies expectations of her journey with Sanfilippo Syndrome. Diagnosed at the age of 9, Sanfilippo Syndrome is a rare degenerative genetic condition affecting the central nervous system. As parents, it has been a difficult road witnessing the loss of many skills. Yet Sasha's boundless enthusiasm and joyous spirit make life beyond rich each and every day. For several years Adaptive Sports Partners has infinitely improved Sasha's quality of life by integrating her further into her amazing community and offering her experiences never dreamed possible. Hiking Mt. Washington at Sunrise is one of those extraordinary moments.

ABOUT 2019 Team Sasha

Name Date Amount Comments
Michael Huff 05/29/2019 $150.00  
Rusty Forgues 05/09/2019 $25.00 Happy to Support You! God Bless, Rusty
Anonymous Friend 04/22/2019 $200.00  
Joanne Huff 04/18/2019 $50.00  
  Total $425.00  
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